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Talking about acromegaly

It is natural to have ups and downs, good days and bad days, whether or not you have an endocrine condition such as acromegaly, which may require chronic treatment.

Throughout your journey with acromegaly, remember to be kind to yourself and allow time for you to process information that you may receive.

Talking to and sharing information with your family and friends may also be a great help. So, try not to bottle up your emotions, and talk about them. As the old saying goes, a problem shared is a problem halved.

Support groups

Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.


How does having acromegaly make you feel?

People with acromegaly have said that it makes them feel old before their time, very low or depressed, alone or isolated, and frustrated and embarrassed.

Talking with your family and friends about your diagnosis or how you are feeling may help improve low mood. Making others aware of your condition and how it affects you is an important part of your journey and living with acromegaly.

See the Practical tips and tools section for advice on how to improve low mood.

What if I get worried or concerned?

If you have any concerns or worries, let someone know. Among your family, your friends, your nurse, your hospital doctor or your general practitioner, there will be someone there to help and support you. All you need to do is ask.

Make the most of your visits with your doctor. The more you understand about your condition, the more in control you will feel. Take a list of the questions you have to your next hospital appointment and write down the answers.

Or take a partner, a family member or a friend with you so that they can remind you about the questions you need to ask.

They will also help you to remember comments from the doctor and nurse after your visit.

Talking to others can help

How much or how little you tell your family members or friends about your current health is up to you. Do not feel that you need to tell everyone until you are ready. Likewise, do not feel that you have to keep everything to yourself until it becomes an emotional burden, or that you have to protect your family and friends all the time.

Remember family and friends should be there to support you as much as you are there to support them.


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 Living with acromegaly

Acromegaly is a long-term condition. Here you can find information about how people with acromegaly have adapted to their diagnosis and tips for living with the condition.

Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition.

Support groups

Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.

Learn about acromegaly

Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs.

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit for more information about us.

Consultez toujours un professionnel de la santé lorsque vous avez besoin de conseils en matière de soins de santé ou lorsque vous avez des préoccupations particulières concernant l’acromégalie, sa prise en charge ou ses effets secondaires. Les renseignements fournis ici ne doivent pas remplacer les conseils offerts par un professionnel. Ce site Web a été conçu par Ipsen en collaboration avec des personnes atteintes d’acromégalie et des professionnels de la santé qui s’occupent d’elles. Ipsen tient à remercier toutes les personnes qui ont participé à l’élaboration de ce site Web pour leurs précieux commentaires et leurs témoignages. Les noms utilisés sur ce site Web peuvent être fictifs. Pour en savoir plus à notre sujet, consultez le site

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