Help for people living with acromegaly
Learn about acromegaly
Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs
Find out how acromegaly is diagnosed and the tests that healthcare professionals may use to assess acromegaly
Read about acromegaly treatment options, and the goals of therapy
Read and hear answers to some common questions that patients with acromegaly have asked
There are medications available for use instead of or in addition to surgical intervention that can keep IGF-1 and growth hormone levels in the normal range, for the control of acromegaly symptoms. The symptoms of acromegaly can be nonspecific (such as aching joints, or tiredness), or may develop so slowly over time as to be almost imperceptible (for example, gloves or shoes feeling tight). If you suspect you might have acromegaly, consider this checklist of symptoms and signs and, if several of them seem to apply to you, discuss your thoughts with your doctor.
We also offer opportunities for you to connect with and learn from others who share the condition: register in Acromunity Connections to begin a conversation, or look for a support group in your area.
Gigantism occurs in children and young adults, while acromegaly occurs in the adult population. Both conditions are caused by too much growth hormone. The key difference is that children's bodies are able to grow, albeit abnormally, in response to the high level of growth hormone; since adults no longer need growth hormone, their bodies react differently and develop a range of symptoms. There is some evidence to suggest that people with acromegaly are at increased risk for developing a meningioma, although the coexistence is very rare. It is also possible that undergoing radiation treatment for your acromegaly may increase the chance of developing a meningioma later in life.
Contact us today for more information about:
- Treatment for Acromegaly
- Acromegaly Symptoms
- Pituitary Adenoma
- Pituitary Tumor
There are many steps you can take to manage your symptoms in concert with those recommended by your health care provider. Take some time to browse "Living with Acromegaly" to learn how diet, exercise, sleep habits, and taking care of your emotional health can contribute to living your best life.
An adenoma (a benign glandular tumour) within the pituitary is usually the reason for an excess production of growth hormone, which results in the symptoms of acromegaly. While this tumour is not cancerous, its presence impacts the function of the pituitary gland, and has consequences over the long term. The primary goal for treating acromegaly is to reduce the levels of growth hormone and IGF-1 to normal. One of the first options to consider is removing the pituitary tumour that is the root cause of the symptoms; the second option is to reduce the tumour's size. In both cases, it is important for the pituitary gland to be able to function normally after treatment.
While acromegaly is a very rare condition, living with it is not something that you have to do alone. There are many resources available to help right here. In addition to being a credible and reliable source for information about the medical aspects of your symptoms, diagnosis and treatment, it is our goal to offer information to help navigate the emotional and social challenges alongside the physical.
Acromegaly is a rare condition: it is estimated there are only 40 to 125 people per million worldwide living with this long-term and slowly evolving condition. Although you may not be likely to meet another person who completely understands what it means to live with acromegaly, the support you need to make your life easier is available here, from answers to your questions about the condition to practical tips for daily living and opportunities to connect with others who share your concerns.
Living with acromegaly can sometimes make you feel like you are alone. The Acromunity Connections tool hopes to help change that. We invite you to complete a profile and search for others living with this disease for friendship, support or networking.