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Help for people living with acromegaly

Learn about acromegaly

Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs

Diagnosing acromegaly

Find out how acromegaly is diagnosed and the tests that healthcare professionals may use to assess acromegaly

Treating acromegaly

Read about acromegaly treatment options, and the goals of therapy

Acromegaly FAQs

Read and hear answers to some common questions that patients with acromegaly have asked

Acromegaly


Acromunity provides support and information about acromegaly, a condition caused by an excess of growth hormone due to a pituitary tumour. We also provide information on the symptoms of acromegaly, gigantism, meningioma and pituitary adenoma.


Select from one of the links below for more detailed information:

The symptoms of acromegaly can be nonspecific (such as aching joints, or tiredness), or may develop so slowly over time as to be almost imperceptible (for example, gloves or shoes feeling tight). If you suspect you might have acromegaly, consider this checklist of symptoms and signs and, if several of them seem to apply to you, discuss your thoughts with your doctor.

Gigantism occurs in children and young adults, while acromegaly occurs in the adult population. Both conditions are caused by too much growth hormone. The key difference is that children's bodies are able to grow, albeit abnormally, in response to the high level of growth hormone; since adults no longer need growth hormone, their bodies react differently and develop a range of symptoms.

There is some evidence to suggest that people with acromegaly are at increased risk for developing a meningioma, although the coexistence is very rare. It is also possible that undergoing radiation treatment for your acromegaly may increase the chance of developing a meningioma later in life.

An adenoma (a benign glandular tumour) within the pituitary is usually the reason for an excess production of growth hormone, which results in the symptoms of acromegaly. While this tumour is not cancerous, its presence impacts the function of the pituitary gland, and has consequences over the long term.

The primary goal for treating acromegaly is to reduce the levels of growth hormone and IGF-1 to normal. One of the first options to consider is removing the pituitary tumour that is the root cause of the symptoms; the second option is to reduce the tumour's size. In both cases, it is important for the pituitary gland to be able to function normally after treatment.

Acromegaly is a rare condition: it is estimated there are only 40 to 125 people per million worldwide living with this long-term and slowly evolving condition. Although you may not be likely to meet another person who completely understands what it means to live with acromegaly, the support you need to make your life easier is available here, from answers to your questions about the condition to practical tips for daily living and opportunities to connect with others who share your concerns.


Acromunity Connections

Living with acromegaly can sometimes make you feel like you are alone. The Acromunity Connections tool hopes to help change that. We invite you to complete a profile and search for others living with this disease for friendship, support or networking.




Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit www.ipsen.ca for more information about us.