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How common is acromegaly?

Acromegaly is a rare medical condition.

In one U.S. study, the rates of acromegaly were relatively constant across 2008-2012 with approximately 11 cases per million people.

Worldwide, it has been estimated that there are only around 3 to 4 people per million people in the general population newly diagnosed with acromegaly each year. There are thought to be about 40 to 125 people per million of the population living with the condition.

Diagnosing acromegaly

Find out how acromegaly is diagnosed and the tests that healthcare professionals may use to assess acromegaly symptoms

Who gets acromegaly?

Men and women are affected equally.

The average age of diagnosis is early to mid-40s.

Very rarely, acromegaly can be diagnosed in children and adolescents. Children and adolescents will, however, develop gigantism, whereas adults develop acromegaly.

Is acromegaly hereditary?

The vast majority of people have tumours that secrete growth hormone and develop spontaneously in the pituitary gland.

Thus, acromegaly is sporadic, meaning it is not inherited. When acromegaly develops at an early age some cases have an identifiable genetic mutation.

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Learn about acromegaly

Learn about acromegaly including how excess growth hormone released by a pituitary tumour causes this slowly evolving condition, and the early symptoms and signs of acromegaly.

Find out more about acromegaly

Diagnosing acromegaly

Find out how acromegaly is diagnosed and the tests that healthcare professionals may use to assess acromegaly symptoms

Treating acromegaly

Read about acromegaly treatment options, including surgery, medication and radiotherapy, and the goals of therapy

Acromegaly FAQs

Read answers to some common questions that patients with acromegaly have asked

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit for more information about us.

Consultez toujours un professionnel de la santé lorsque vous avez besoin de conseils en matière de soins de santé ou lorsque vous avez des préoccupations particulières concernant l’acromégalie, sa prise en charge ou ses effets secondaires. Les renseignements fournis ici ne doivent pas remplacer les conseils offerts par un professionnel. Ce site Web a été conçu par Ipsen en collaboration avec des personnes atteintes d’acromégalie et des professionnels de la santé qui s’occupent d’elles. Ipsen tient à remercier toutes les personnes qui ont participé à l’élaboration de ce site Web pour leurs précieux commentaires et leurs témoignages. Les noms utilisés sur ce site Web peuvent être fictifs. Pour en savoir plus à notre sujet, consultez le site

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