Keeping track of your medical care
During the initial phases of your medical care for acromegaly, you may see several healthcare professionals and undergo multiple tests, treatments and other health assessments.
You may find that keeping a simple notebook or file containing all of your important medical information in one place will help you to keep track and share essential information about your acromegaly with others.
Support groups
Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.
Why should I keep a record of my medical care?
Keeping a record of your medical care can help you in two ways.
First, it should save you having to repeat yourself every time you see a new healthcare professional by giving your essential information at the start.
Second, it will also provide you with a reminder of the tests and treatments you have had, and allow you to keep a log of any symptoms or side effects you may have had or are experiencing.
What information should I write down?
Keeping a record of the following in one place or document may be useful:
Your personal details
Your name, date of birth and contact details, including the name and contact details of someone that could be contacted in an emergency.
Your acromegaly history
Your test and scan results
Your treatment plan
Your symptoms and side effects
Details of your healthcare team
Your general health
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Practical tips and tools
Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition.
Support groups
Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.
Learn about acromegaly
Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs.
