Adapting to acromegaly
There are many aspects to adapting to acromegaly, from the initial stress of diagnosis and having to undergo multiple tests and possible surgery to learning how to cope with a condition that may need continued treatment.
Some people use their diagnosis of a long-term condition as a springboard to a healthier lifestyle. They may stop smoking, cut down on alcohol, and make a conscious effort to eat better and undertake regular exercise.
Keeping a positive attitude towards your life in general will also help you throughout your journey with acromegaly.
Support groups
Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.
Learning to cope with your diagnosis
Experiencing physical and other changes due to acromegaly may make you feel tired, in pain or just awkward and different to others around you.
Although having finally received the correct diagnosis of acromegaly can provide some relief, perhaps after several years of being unwell, you may still feel stressed and worried about what lies ahead.
Your healthcare team can arrange for counselling if you think this will be helpful.
Also, learning more about the condition can make you feel more in control of your life again.
How can I help myself?
Many people find it useful to know as much as they can about their condition and its management.
Contact your local patient support group. They can put you in touch with other people in a similar situation and can also help you with practical advice and information on issues such as:
- Obtaining life and other types of insurance (e.g., travel insurance)
- Employment and taking time off work
- Planning for the future
- Travelling with a long-term condition
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Practical tips and tools
Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition.
Support groups
Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.
Learn about acromegaly
Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs.
