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Adapting to acromegaly

There are many aspects to adapting to acromegaly, from the initial stress of diagnosis and having to undergo multiple tests and possible surgery to learning how to cope with a condition that may need continued treatment.

Some people use their diagnosis of a long-term condition as a springboard to a healthier lifestyle. They may stop smoking, cut down on alcohol, and make a conscious effort to eat better and undertake regular exercise.

Keeping a positive attitude towards your life in general will also help you throughout your journey with acromegaly.

Support groups

Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.

 

Learning to cope with your diagnosis

Experiencing physical and other changes due to acromegaly may make you feel tired, in pain or just awkward and different to others around you. 

Although having finally received the correct diagnosis of acromegaly can provide some relief, perhaps after several years of being unwell, you may still feel stressed and worried about what lies ahead.

Your healthcare team can arrange for counselling if you think this will be helpful.

Also, learning more about the condition can make you feel more in control of your life again.

How can I help myself?

Many people find it useful to know as much as they can about their condition and its management.

Contact your local patient support group. They can put you in touch with other people in a similar situation and can also help you with practical advice and information on issues such as:

  • Obtaining life and other types of insurance (e.g., travel insurance)
  • Employment and taking time off work
  • Planning for the future
  • Travelling with a long-term condition

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 Living with acromegaly

Acromegaly is a long-term condition. Here you can find information about how people with acromegaly have adapted to their diagnosis and tips for living with the condition.

Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition.

Support groups

Find an acromegaly patient support group in your country to learn about local activities and events that you may be able to attend.

Learn about acromegaly

Learn about acromegaly, including what causes this slowly evolving condition, and the early symptoms and signs.

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Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit www.ipsen.ca for more information about us.


Consultez toujours un professionnel de la santé lorsque vous avez besoin de conseils en matière de soins de santé ou lorsque vous avez des préoccupations particulières concernant l’acromégalie, sa prise en charge ou ses effets secondaires. Les renseignements fournis ici ne doivent pas remplacer les conseils offerts par un professionnel. Ce site Web a été conçu par Ipsen en collaboration avec des personnes atteintes d’acromégalie et de professionnels de la santé qui s’occupent d’elles. Ipsen tient à remercier toutes les personnes qui ont participé à l’élaboration de ce site Web pour de leurs précieux commentaires et leurs témoignages. Les noms utilisés sur ce site Web peuvent être fictifs. Pour en savoir plus à notre sujet, consultez le site www.ipsen.ca

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